Almost There...(Still)

Duh?? But I thought...

I saw a You Tube video about a girl who has HFA. The video demonstrates a typical day for her, dealing with her sensory issues and normal worries. Her dad does a voice over, and says: "In some ways, I think her having HFA can even be harder than if she were severely Autistic; because, you seem to spend your whole life being almost there...and then the disability takes over, and she realizes again, that she didn't quite make it. Whereas, if a person is severely autistic, their limitations can be much more clearly defined, and also their abilities." I think he was trying to say that there may not be as many grey areas for someone with severe autism, and this can make things less complicated overall (??). Hmmm... I am thankful to God for all of the ability that I have. What a gift!

This morning I saw a FB post from a page dealing with Autism and AS, from a person who is worried because they are an adult now, and their parents are getting older. People around this person are telling them that they need to get their life together and be an adult (because of the age of their parents). I can relate. Personally, I know that God gives everyone different strengths and weaknesses for a reason. He places different people in our lives, not just because we need them, but because they need us too. But it's no mystery that Autistics often don't reach normal milestones that show development at the typical time that others around them do. Hey, in many cases we DO reach them, and we do it well. But I think we often feel an acute sense of alienation, because we seem to live so much of our life, "out of gear" from most around us. Now our lives are so full of specific mercies and graces that God tailors to our situation and circumstances. Things that we would never know, were it not for the "weaknesses" in our lives that allow his strength to show.

What happens when someone comes of age (as it were) and they've been of age for a long time, but are still dependent on adults in ways that they dearly wish they were not? What if there seems to be no way to fix it, and so they must give into the weakness and allow others to help them? What better way to demonstrate God's grace, right? But here's where the fear comes in: The adults around this adult are getting older, they're tired (maybe they're hurting because they can't do a lot of things they used to). The one thing those of us with disabilities do not want is to be a burden to those around us. It breaks our hearts when we start out with so much passion, drive and enthusiasm to do the right thing (this we have droves of energy for) and then we get that feeling of "drop" as we must come to the realization that our bodies and senses are not able to handle the day to day processes of... working an 8hr a day job, or driving a car, handling multiple directions at once, dealing with bright lights, loud noises, and the overwhelming feeling that we just want to hide under a blanket and cry. There's a torrent of questions that run through our minds all the time. Sometimes, one of them is: Do I completely suck as a human being?" Ouch.

Now, as depressing as this is, I think we ALL have asked this at times of ourselves. I'm not saying that this is exclusive to those with disabilities...it isn't. But as we with disabilities get older, it becomes harder and harder to deal with the "burden" that we are a burden to others, I think. Sometimes we hate the fact that we feel like a little toddler learning to walk and we need a stronger, wiser, more capable adult to lean on to help us up the stairs of life. Add to this, the fear that those who make up our support system ARE getting older. Sometimes we fear that they will die and leave us. Then what?? What do we do when we feel like we're sliding around on thin ice and we're only trying to keep from sliding. We need to hold somebody's hand for that, but we feel rotten for sort of "attaching" to someone else. We're an adult now, right? Many of us also have a "crippling" fear that those we have to depend on, might secretly hate us. Because we can't seem to grow up. We can't get our lives together. We seem to always need the same assistance for the same things, and so we are forced to find different ways of measuring our successes in life, that usually are not the more noticeable successes of most of those around us.

Who wants to live with a spirit of fear (especially when God has not given us a spirit of fear)? So the guilt becomes thicker. Sometimes it seems to eat at our hearts like a moth eats at an old sweater. We know, we can't attach to other people THAT much, so we develop other attachments, vices, and methods of coping that often are unconventional and can seem childish, even. We have a Heavenly Father who understands. Anyone, who wants to ask me why I believe in God, it's that simple. He is the empathy that I often do not show to others...and not because of any Autism. It's because I'm self centered and want my own agenda, with the least amount of complication. Hey, doesn't everybody?